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GRACE NOVACHECK, 13, from Texas, has undergone 33 major surgeries in her short life. Grace has Escobar syndrome, a rare condition which causes joint contractures. This affects her jaw, neck, arms and legs. Grace also suffers from scoliosis – where the spine is curved to one side, impacting her mobility. Doctors were unable to diagnose Grace's condition for the first month of her life. She's also had a spinal fusion, coronoidectomies, a cleft palate repair, plus a jaw distraction and jaw stretches. Grace needs help with everyday tasks like getting dressed in the morning and putting her leg braces on. She has also experienced judgement from others. Despite these setbacks, Marcus has never let Grace's condition get in the way of her achieving goals.
Follow Grace here: https://www.youtube.com/channel/UCX6i...
Video Credits:
Videographer / director: Chris Sinclair
Producer: Kate Moore
Editor: Thom Johnson
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I've Had 33 Surgeries - And I'm Only 13 | BORN DIFFERENT ─ truly
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